Pray for baby Reef Carneson

Continuing to pray for him

Here are the last few updates from their website on what has been happening.

08/10/2009
update on Reef: he is swollen up with fluid and has what they call venaclusive disease, his skin is peeling off under his arms and bum and back of his head and he is unhappy and uncomfortable, but again on the bright side the transplant seems to be w...orking so let me be positive......actually to be honest I am ANGRY!!! WHY ME??? WHY REEF??? SO UNFAIR. ok Im good now. had my moment! urgh!

07/10/2009
Hi to all my angels travelling with us on this long hard road.....I have cracked!! I am sick and have been kiked out of the hospital to get better and you know what? I NEED IT! Ryan my most wonderful, capable husband is looking after my precious boy and I am chilling at my kind Aunty Katie wo lives down the road from the hospital. I slept like a log last night for the first time in a very long time! I woke up to glorious sunshine and had my breakfast outside in FRESH air. I had the most refreshing long hot shower and then went and did some retail thrapy. I thanked God for the glorious day and I talked to everyone about Reef (I MADE THE PHARMASIST CRY) Sorry did not mean to upset but rather to inspire by Reefs story. She is now gonna donate platelets. PLEASE PLEASE ANY A+ BLOOD GROUPS donate platelets. Reef needs a bag almost everyday and we can not afford for him to have to wait. His nose bleeds and he bruises with out them so f you know people who are a+ AND HEALTHY get them to the blood bank and hooked up to donate. You can specify its for Reef and they will kepp them for us...even o+ can donate platelets for Reef. Reef as been having a rough time of late. The brilliant Dr Reynders as left for BRAZIL (how dare you leave us!!!!) till Sunday and as Murphy has it Reef has blown up with fluid. He went from 9.85kg to 11.7kg and his belly swelled from 55cm to 60cm. He is so sore and uncomfortable. His liver, kidneys and spleen are taking strain, he is dehydrated and hardly eating or drinking. I miss my boy so much. Reef used to be the happist smiliest baby ever and now all he does is cry and moan. I wish I could just take it all away and give him back his smile....I can not wait for the day he will be happy once again. Did you know it takes 1 year to fully recover from a transplant? and he will have to be in isolation for that year and will only be able to interact wit kids when he is 5? THAT SUCKS.I am being really negative! I will write again after I am feeling better and then am sure my perspective will ahve changed. How can people in this world take things for granted. I appreciate all I have now and I think how silly to ever want fortune or fame when all we want is health fr our baby boy? I challenge everyone to say thanks so God for everything they experience in one day from the sunshine to the roof over your head to he love of your kids to the love of your husband etc....Hope everyone has a fantasti day and love and hugs to you all. Reefie mommy will be back soon with a spring in her step, love in her heart, a sword in hand to fight he fight once again and we will win this together. LOVE YOU MY SWEET ANGEL BOY AND RYAN YOUR THE BEST HUSBAND EVER! LOVE YOU WITH ALL MY HEART AND SOUL.

02/10/2009
Hi all,
Sorry I have been so quiet lately. With reagrds to the bone marrow transplant all is going really well, Reef is getting stronger every day and his immune system is slowly building up. With regards to infections he is not dling so well. He has a terrible flu at the moment, his eyes are swollen shut and his little body is covered in a red spotty rash (graft vs host disease) He has a slight temp and is extremely miserable. I have to hold him al day long. If I put him down he cries......Its taking it toll on me and I am so depressed. It is so hard to see him suffering day in and day out and trying to stay positive is a battle. I talk to God all day long and pray that this can just be all over soon....not sure just how much more I can take! I am exhausted and lonley and my heart breaks every time I see the tears roll down Reef's face. Please God give me the strength to carry on.